Last week we had 3 doctor appointments, 4 therapy sessions,
2 days of school and 4 playdates. We have been busy! Our first appointment with
our amazing doctor revealed that our sweet little girl has really high levels
of certain toxins in her body. She is high in Barium, Cesium, Aluminum, Nickel,
Lead, Thallium, and Tin. She is slightly high in Mercury. Ok, so have we been
bathing her in toxic baths every night or what? Basically the doctor thinks
that the environment (water, food, shots, etc.) is too much on some children’s
systems and they can’t properly detox. So it is time for Baylor to detox some
more. The HBOT was a detox and has helped a ton, but now we are moving on to
chelation therapy. We will be giving her 3 days of a chelator called DSMA and
the following 11 days with her supplements.
DSMA will bind the toxic metals that are in her cells and
pull them out through her urine. They also take a few good things but that’s
what the partner minerals will replenish. We will start this tomorrow and have
her retested in about 2 months. This chelator cannot cross the blood/brain
barrier so it is considered very safe. This therapy has helped a lot of
children, but for some it doesn’t make any difference. Our doctor has used this
therapy a lot and we are really trusting in his experience and advice. Not to
mention God really brought this doctor to us before we ever knew we needed him.
So we are very much trusting in this path God brought before our family. We
will commit this therapy to Him and we will see if it works for Baylor! Please
be praying that it does!
I have to document Baylor’s improvements for a minute. Just
today she got upset with me for not giving her Easter candy to her for lunch
and threw a mighty big fit in the kitchen. I picked her up and sat her on my
lap and she yelled then pointed at the Easter baskets, patted her chest a few
times and said “need, need,need!!!” I know that may not sound like much, but
she was communicating with more than one gesture and words!!!One of our biggest
struggles is communication and she really tried hard to tell me she wanted her
candy! I was so excited! Also, she is trying to play around Ainsley (which
ticks Ainsley off when she’s trying to do art) and do what she is doing….normal
stuff! Oh, and did I mention she pee-peed on her little potty? I’m so not going
to push that right now, but I told her that’s what you do on it an she did it!
I can ask her for a kiss and she’ll come up and kiss me. She is really
understanding what is going on (and throwing some serious fits if we try to
thwart her plans). Girlfriend is a walking disaster. If it can be spilled,
thrown, squirted (think liquid bathroom soap as she opens drawers and climbs on
the counters), drawn on (walls and floors), or dump out the water from the bathtub,
she is going to do it. Non-stop. All day every day. Don’t come over and wonder
why my house isn’t clean. Now you know. We are over-joyed at her progress. These shots are well worth it!
Her ENT appointment went well, and we haven’t gotten total
confirmation yet but we are pretty sure tubes are in her near future. We had
her hearing tested and she is within normal range, yay! We figured this as she
will respond to Veggie Tales music from the other side of the house but ignore
you when you try to re-direct her. Feisty little thing. Our next appointment is
a week from Tuesday at Vanderbilt for a diagnosis. We will let you know what
that diagnosis not long after we receive it. Please pray for that appointment, as well.
I believe I will end there for now. This month is Autism Awareness month and I
encourage you to just do a few minutes of research and educate yourself a
little. I didn’t know a fraction of what I know now before Baylor’s onset. Just
Google "autism", or go to www.tacanow.org.
God is faithful and we are joyful in the wait and grateful in the blessings He's been giving our family! Happy Easter! He's risen and alive and He still moves stones!
No comments:
Post a Comment