Today Baylor, Stephen and I went to Vanderbilt’s Kennedy
Center in Nashville to meet with the Director of the TRIAD division for a
diagnosis. I will give you a quick run-down on the diagnosis game. The medical
book that is used is called the Diagnostic and Statistical Manual for mental
disorders, or the “Bible” (for lack of better terms) for mental diagnosis.
These are updated and changed fairly regularly. Right now autism carries a few
different titles, but all fall under the autism spectrum. There is Autism with different levels of
severity, Asperger’s, Sensory Processing Disorder and PDD-NOS. Some
psychologists still use these labels, but the DSM is about to change and scoop
all these forms of autism under one condition called Autism Spectrum Disorder
(or ASD). Baylor was diagnosed with autism as that is the only diagnosis the
doctor gives and provides the best means for services. It also makes her not need to be re-diagnosed when the change takes place. Basically she fell on the spectrum so he calls it autism. I am pretty confident that the word autism will
morph slowly into ASD when they change over the books. So, if you hear us use
it, that’s why.
Basically, we knew going in that Baylor fell on the spectrum,
so a diagnosis is really a formality and helps with getting her qualified for
therapy and helps insurance pay for her services. Also, with a diagnosis, she
is entitled to a lot from her school district well before and during elementary
school. We are blessed to be in
Williamson County, as they provide top notch amenities for kids with
disabilities. The school provides Occupational
and Speech therapy as well as an Applied Behavioral Therapist (ABA) in her
inclusive classroom setting (kids of all abilities). Right now Baylor is in a
program that provides her with school, and her therapies. The doctor did say
that with her diagnosis, she should be able to qualify for an ABA therapist and
that’s about all we need to do other than what we have been doing. I would like
to note some of the great things he said to us about Baylor and her future.
One of the greatest things we were told is that she only
shows half of what autistic kids typically present. They were so impressed with
her motor skills and they believe she did not really need the Occupational
therapy, except that like I had figured, she gets extra time to work on verbal
skills and social interaction. Those are the two of her areas that present on
the spectrum. Since she is trying to use words and gestures to get us to do
what she wants, they believe the ABA therapist will really help pull her into
much better communication. Her age was another big deal. The doctor was really
happy that for her age we have been doing so much for her already. He told us
that the children with the best trajectory for success looked like Baylor. Sadly,
he mentioned that she was more the minority of where kids are when they step
through their doors. We just have to make sure we give her good intense
therapy to give her the best chance of success. He mentioned that kids presenting like her were the ones who (not a
guarantee but very likely) could get to kindergarten/first grade needing little
to no help. That’s the hope that we have focused on and the peace that we have
been given. It’s really nice to hear this from a head psychologist and our MD
that have over 3 decades of practice in them that Baylor’s future looks really
good.We
are so incredibly blessed!
Where do we go from here? He’d love intense, in-home ABA and
if possible more school. Alright! We are also looking for some headphones for
Baylor’s music therapy we are wanting her to start. It’s almost impossible to
find the headphones used online. If you all know of anyone that’s in music
therapy or has gone through it and they have some we could buy, please let us
know! They are called Sennheiser HD500 A. These headphones distort CD’s that
make pathways from one side of the brain to the other and it has shown to help
in all aspects of autism. We hope to start this soon!
Back to the ears, we are scheduled for tubes in early May.
When we know the exact date, we will let you know (probably through Facebook)
and ask for your prayers!
We hope you can see God’s hand in all of this, because not
only can we see it, but we feel it. Life is so much better lived in dependence
on Him. Please keep praying!! Much love
from the Kings J
