Not long after I posted last, Baylor's occupational therapist asked me if we'd noticed Baylor's eyes. I'm a bit dumbfounded as I ask why. Well, her left pupil dilates differently than her right. I look at her and sure enough she's right. What the heck does that mean? I really have a love/hate relationship with Google. You know I'm going to look that mess up. But first things first.
I immediately call my eye doctor, who is conveniently not there and then send a message to Baylor's doctor asking what to do. He sends me a message and says he referred her to Vanderbilt's Pediatric Eye Center. I wait 3 days and call Vandy. They have nothing. I call back the first of the following week. Nothing. So off I go harassing Bay's doctor's office. The girl at the front, Brittani is amazing. She drags Baylor's referral out from the bottom of the pile and spends an entire day calling to get her in. The next day she gets through and now the appointment is set a week out (today.) Yes, she is such a God-send and I love her dearly.
Back to Google. I type "different pupil sizes, children" and guess what pops up.....neuroblastoma. Yep, brain tumors. Awesome. Second most popular thing it mentioned was brain damage. That's great, too. Now we get to wait a week and a half to find out. But that's the funny thing. The Catherine-past would have totally bugged out. Sure I have been concerned, but entirely at peace. A peace I can only describe as having the God of the Universe hold your heart. Both Stephen and I have been so peaceful since the start of all of this. I can't tell you what a blessing that is. I even had my own random appointment today and my blood pressure was checked and was perfect. See, proof. Now, about that appointment. The office called early this week to say it could be1-3 hours. Good times.
Baylor hated it. She yelled at him while he looked at her. This doctor was the "chief" of the large office which was really nice to know. After a quick look over he tells me what things can go wrong with the eye. He mentions what brain damage looks like and how that look can be seen in children when they are about to die. Um, seriously, does she have that? He says, "Oh, no, she doesn't have that." Okay, thanks for that scare and depressing information. Then he tells me he sees damage in the eye in children on the spectrum from major things wrong with the brain. I'll be honest, if anything that's the worst I thought I'd hear. But he doesn't think it's that either. So he thinks he should do a dilation test just to make sure we don't need an MRI. Twenty minutes later Bay is looked at again and he tells me her eyesight looks great and that he sees no structural damage that we need to worry about right now. Obviously if anything changes we'll have to do an MRI, the whole workup but right now she looks great!
On a side note, the shots are a blast and she totally has some issues with night waking again. Yep, a few hours of bouncing around a crib for hours at a time or waking up so early (4ish) and not going back to sleep. On the bright side we get a night peppered in where she's so exhausted from not sleeping the night before she'll sleep through the whole night. Hopefully in the next few weeks we can start to see some good effects from me torturing her with a needle and her torturing us with being up all night ;)
I will leave you with one of God's awesome promises to those who are saved:
John 14:27 ~ [Jesus speaking] Peace I leave with you; my peace I give to you. Not as the world gives do I give to you. Let not your hearts be troubled, neither let them be afraid.
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