Today was the last day of what could be the only or could be
the first round of oxygen therapy! What an amazing gift this therapy has been.
Basically, we started the first week in December going to Baylor’s doctor’s
office and “diving” in this hard chamber that pressurizes you under the
equivalent of 9 feet of water. Then, they hook you up with pure 100% oxygen
from the outside of the tank with hoses, and you attach those on the inside
that connect to your plastic hood. Yes, a plastic sealed hood over your child’s
head while you are locked in a chamber you can’t stand up in and tubes you have
to make sure aren’t coming undone while your little bouncer attempts to jump
around. You are in there for about an hour and a half each time. Our doctor is the only one in middle Tennessee with a chamber. The next closest one is Memphis. God orchestrated this whole thing for us, I have no doubt.
Protocol is 40 dives, done as close together as humanly
possible. We started the first week in December and only took breaks at
Christmas for a day, and a few days during two separate weeks for ear issues. What
a trooper Baylor was! We must mention Ainsley, who was amazing going to so many
of these when she couldn’t be with Daddy at the office. Ainsley was so sweet
and stayed outside the chamber and played with what she brought from home at
the desk where I could not see her the entire time we were diving. Not every 5
year old would do this well, I promise. What a great daughter and big sister.
She truly is an amazing person. I knew it before, but now she's just showing off.
The perks of diving are greatest for autism, lyme disease,
stroke, and brain trauma. However, they have found it helpful for detox,
fibromyalgia, and many more issues. You can Google HBOT if you are so inclined.
During this time, she started coming out of the fog most people associate with
autism: lack of social interaction, dependency, touch aversions, loose bowels,
not answering when you speak, etc.
Baylor’s vocabulary is growing every day, she leaps out of
my arms and into her teachers, therapists and her daddy, she imitates your
sounds and words, she uses words when they are appropriate, and overall just
growing! It makes us so happy to see her work on communicating (which by far is
her hardest area), not only with us but with people in general.
Her therapists have told me she is improving EVERY time we
bring her. She goes twice a week to speech and occupational therapy.
Occupational therapy really helps kids learn how to play and problem solve, as
well as giving them all kinds of different sensory input. Speech is
communication, both receptive and expressive. She gains each week in this. God
is incredible!
So now we scale back our schedule where we don’t have to go
every day for oxygen therapy, but man, has it been worth it! Now we watch the new supplements and possibly heavy metal detox and see if she would even need more dives. She may not. The next phase will show a lot. If she becomes stagnant in her progression, we may revisit a series of dives. We express huge
thanks to those who have had a very personal hand in her oxygen therapy and
those of you who pray for Baylor. You are an invaluable part of this journey!
To God be the glory!
Wow Catherine! That is incredible. I'm so glad to hear that she's improving because of this therapy. You are truly a loving and patient mother to commit to this process, and whatever is necessary for the health and growth of your baby girl. Thanks for sharing. I look forward to watching her progress!
ReplyDeleteHey, why not give your life for another, much less your own child! As long as God continues to open doors, I'll walk through it. Thank you for your sweet words of encouragement :)
ReplyDeleteA terrific recap of Baylor's (and your family's) journey. God is great and deserves all the glory. We are so excited over Baylor's progress. Keep up the journal. Glad you're putting your writing skill into action.
ReplyDeleteLove to all. Hugs and kisses to Ainsley and Baylor.
Dad
You've always been a huge advocate of mine. Thank you for all your love and support!
ReplyDelete